KORDA Registry Central

Dedicated cancer centres need a well established registry as a basis for clinical audit and clinical practice change management. Clinical care registries have the potential to observe the natural course of disease, illuminate practice patterns and variations in them. It can also assess clinical outcomes: effectiveness and safety, explore humanistic outcomes, including health-related quality of life & other patient-reported outcomes. In association with other databases it can assess disease prevalence, economic outcomes, examine associations between care & outcomes and inform clinical and policy decision-making. Patient Registries also provide real-world data that complement clinical trial evidence. The collaboration therefore intends to utilise the full advantages provided by this real world study design.

Collection of data on Colorectal Cancer and Breast Cancer (BRECC) is currently underway. The BRECC registry is a collaboration between Kenya Society for Haematologists and Oncologists (KESHO) and Kenya Oncological Research Data Base (KORDA) and fully supported by Hoffmann La Roche management centre for Sub-Saharan Africa.